Thirteen-year-old Nick LeGrand, like many other teenage boys, is a huge sports fan. He would love to actually participate in sports like baseball, basketball, and football, but is unable to because he suffers from primary pulmonary hypertension. Nick is attached to an oxygen tank twenty-four hours a day and only has nineteen percent of his lung function. Nick is constantly out of breath, making it very difficult for him to walk short distances let alone play a competitive sport.

Nick was diagnosed with PPH when he was just three-years-old, at which time he was lucky enough to receive a double lung transplant. Unfortunately, just ten years later, the lungs are beginning to fail. Nick is currently experiencing severe chronic rejection of the lungs. As Nick puts it, “[his] lungs are saying, ‘Hey, these aren’t my lungs,’ and fighting against them.”

Nick was on a transplant list back home, but the hospital lost their certification. He and his mom now wait for the lifesaving call in Houston, Texas. They have not seen the rest of their family in six months. This is a tragic situation that Nick and his family find themselves in, however they are sticking together, keeping their spirits high and waiting for that life altering call.

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